Columbia, SC Author and Educator Stephanie Gives-Winckler is spearheading the 1st Annual South Carolina Strollathon: Virtual Edition for Rettsyndrome.org to take place on Saturday, October 24, 2020. Local and nationwide families affected by Rett syndrome will virtually fundraise and stroll to overpower the rare disorder and create a world with it. Typically done as an outdoor, in-person event, this will be the first of its kind where families will have to simultaneously participate in separate environments due to the pandemic.
The purpose of Rettsyndrome.org strollathons is to bring awareness to the disorder, help raise funds for research, and empower families with resources and support. After being an active participant throughout the years for strollathons in other states, Stephanie is finally bringing this event to South Carolina and serving as SC’s Chair for the fundraiser.
Stephanie was inspired to create this fundraiser for SC because her late daughter, Tiffanie Nina Simone Hayes passed away in 2011 due to complications with Rett Syndrome. The pandemic has impacted the format of the event this year, turning it into a virtual strollathon. Participants may stroll in their neighborhood, local trail, or even a treadmill.
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